We are on a mission to find a cure for children with pancreatitis. In March, Rebecca’s Wish Founder, Rebecca Taylor and Rebecca’s Wish President, Christyn Taylor received a tremendous honor. They were granted the opportunity to testify before a U.S. Food and Drug Administration panel at the first-ever pancreatitis, externally-led, patient-focused, drug development meeting. What follows is a string of reflections on their journey.
“Rebecca and I are on our way to Washington DC!! We are panel speakers representing pediatric pancreatitis. Rebecca’s Wish is pairing with the National Institutes of Health (NIH) and other national leaders to make a difference. We will petition the U.S. Food and Drug Administration about the necessity for drug-targeted therapy for the pancreas. As of right now, our only option is opioids to ease the pain.
Please pray for our journey, and we will keep you updated on our progress!” – March 1, 2020
“While on our DC trip to improve pancreas care, Rebecca decided to bring pancreas awareness with a twist of fun….
Before our rehearsal today, we got to see a few important National sites. Rebecca brought her pancreas pillow, affectionately known as Pierre, with her in the pictures. We started the day walking and ended the day in a wheelchair, but Pierre the pancreas pillow stayed by Rebecca’s side.
While viewing our pictures, please remember to pray for children with pancreatitis. Tomorrow is the big day and we are praying for an unexpected miracle! Love to each of you, C & R” -March 2, 2020
“Behind the scenes photos from our rehearsal for the 1st externally led Patient-Focused Drug Development Meeting on Pancreatitis. (PFDD) Rebecca was “phenomenal” according to her proud mother, Christyn
Tomorrow’s unprecedented panel before the U.S. Food and Drug Administration will feature Rebecca’s Wish along with
Mission: Cure and the Living with Familial Chylomicronemia Syndrome. HUGE thanks to the sponsor of this meeting: National Pancreas Foundation.” – Rebecca’s Wish Facebook Page: March 2, 2020
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3:51:00 ” Rebecca’s Wish Facebook Page: March 3, 2020